Landline telephone: Helen Burgess 01332 785404 and Laura Kane 01332 785225

Email: [email protected]

Outreach children’s community team caring for medical complex disability and palliative care needs of life limited children.

Landline telephone: 01332 786807

Email: [email protected]

24 bedded Unit that is part of the East Midlands Neonatal Operational Delivery Network (EMNODN) – Network of units covering Derbyshire, Nottinghamshire, Lincolnshire, Leicestershire and Northamptonshire.

The Derby Unit cares for babies from 26 weeks gestation to term, who may require medical support in varying degrees.

Senior Nurses: Karen Sampson
Contact number: 01332 785 644
Address: University Hospitals of Derby and Burton, Derby Site, Uttoxeter Road, Derby, DE22 3NE

Oncology outreach nursing Service providing ongoing care, education and support to children and young people between 0-18 years diagnosed with cancer and their families.

Landline telephone: 0115 9249924 ext 65805

Email: [email protected]

Based at Nottingham Children’s Hospital.

Referrals accepted for children 0-18 ( and in utero) with life-limiting illness who have a NCH consultant.
Emotional and psychosocial support, personal resuscitation planning, discharge planning, referral to services around the child and family in the community, supporting palliative care and end of life care in the hospital, symptom management, support with wishes and choices at end of life, colleague support

Landline telephone: 0115 924 9924 x 86276
Caroline Dorsett Paediatric Palliative Care Nurse Specialist 07812 275 400

Oncology outreach nursing Service providing ongoing care, education and support to children and young people between 0-18 years diagnosed with cancer and their families.

Landline telephone: 0115 924 9924 ext 65805
Email: [email protected]

Rapid response respiratory physiotherapy to reduce hospital admissions secondary to chest infection/facilitate earlier discharge from hospital. Available to children/young people 0-25 years who have:

• Registered with a Nottingham City / Nottinghamshire County GP
• Have severe respiratory deficit
• Have severe neurological disability
• Under the care of an Acute Consultant

Mobile telephone: 07748 987 610 / 07545 419 374 / 07966 373 860 / 07540 670 191 (8am – 5pm)
Out of Hours: 07748 987 610 (Saturdays between 1 October – 31 March; 8.30am – 4.30pm)
Email: [email protected]

Nottingham Childrens Hospital – Queens Medical Centre.

Providing bereavement support following the death of a 0 – 18-year-old to families and professionals, whether the death was expected or unexpected. Pre bereavement support also provided.

Landline telephone: 0115 924 9924 x 86276

The Butterfly Project provides comprehensive practical and emotional support to children & young people with life limiting illnesses and their families, from diagnosis to bereavement.

The project is funded by the local health authority and can provide a service in the following areas:- City of Nottingham, Gedling, Rushcliffe & Broxtowe.

What they offer:

• Support to individuals in their family homes and within the community.
• Practical help and advice along the child’s/young person’s journey in partnership with a wide range of medical professionals.
• Individual work with the child/young person in respect to hopes, fears, dreams and wishes.
• Emotional support to children/young people and families to explore and express their feelings and make informed choices around ‘end of life care’.
• Opportunities to participate in a variety of activities and have meaningful experiences.
• A range of Family days, activities and events, in response to the needs of the children, young people, their siblings and parents/carers we work with.
• A post bereavement service of two years for bereaved siblings and parents · Sibling support groups and workshops, allowing opportunity to talk about & understand their feelings and to also have some fun.

Office hours: 9am – 5pm, Monday to Friday
Contact: Kerry Lawson, Specialist Family Support Worker, Barnado’s Family Support Services – Nottinghamshire and Derbyshire
Email: [email protected]
Landline telephone: 0115 9255565
Fax Number: 0115 224311
Post: Oban House, 8 Chilwell Road, Beeston, Nottingham, NG9 1EJ

The CNN team provide advice, support and direct nursing care to infants, children and young people from birth to 18 years (19 for those with complex needs in special schools). The team facilitate early discharge and prevent repeat admission to hospital for acute, chronic and end of life needs.

Landline: 01522 573 784 (9am – 5pm)
Email: [email protected]

The CNN team provide advice, support and direct nursing care to infants, children and young people from birth to 18 years (19 for those with complex needs in special schools). The team facilitate early discharge and prevent repeat admission to hospital for acute, chronic and end of life care needs.

Landline: 01476 464 457 (9am – 5pm)
Pager number: 07659 173 782
Email: [email protected]

The CNN team provide advice, support and direct nursing care to infants, children and young people from birth to 18 years (19 for those with complex needs in special schools). The team facilitate early discharge and prevent repeat admission to hospital for acute, chronic and end of life care needs.

Landline: 01205 445 702
Pager number: 07659 591 553
Email: [email protected]

The Specialist Family Practitioners (SFP) are a community based and part of the Oncology, Palliative and Bereavement Team, covering the county of Lincolnshire. We are a multidisciplinary qualified team, adhering to professional standards and codes of ethics which includes a specialist play/youth worker.

We help children, young people and their families to understand their thoughts and feelings about how they are being affected by illness and bereavement. We do this by offering emotional support, using counselling techniques and the use of therapeutic play activities encouraging children and young people to express themselves. The service enables families to talk to somebody completely impartial who is not directly involved in their care.

Landline: 01476 464 259
Mobile: 07768 615 144
email: [email protected]
Service hours: 9am – 5pm Monday to Friday

Landline telephone: 01476 464068
Mobile telephone: 07836 239 951
Email: [email protected]

CCN provide support for children with long term, life limiting conditions.
Provide 24/7 oncall and visiting for end of life care on activation of the on call service.
Landline telephone: 01604 523 896 (Monday to Friday 8am-6pm) to discuss new referral for end of life care