Ava backs Rainbows in cousin’s memory

A 12-year-old girl has supported Rainbows in memory of her cousin.

Ava has developed a passion for our hospice – a place that helped to care for her cousin, Isla.

Isla had Polymicrogyria – a condition characterised by abnormal development of the brain before birth. She died at in May 2012 at the age of two.

Ava, who has previously raised funds for the hospice by taking part in the Bubble Rush in Markeaton Park in 2017, helped out at the Derby Abseil.

Isla’s mum, Joanna, is extremely proud of her niece for her valiant efforts and dedication.

She said: “Although it took us a long time to come to Rainbows because we initially thought a hospice was a place where children go to die. We came just before she was one and we loved it. It didn’t feel anything like we were expecting; it was like a little hotel.

“After getting Isla’s diagnosis and adjusting to life, we were in our own a bubble and were so focused on her staying alive and getting her home. It was about getting her through those dark times. She fought really hard but it was such a lot for her little body.

“Rainbows gave me peace of mind, I was so up and down. I also found support from other Rainbows parents. Rainbows will always hold a special part of my heart and I think that has rubbed off on Ava. It is so lovely that she wants to get involved. It really touches my heart and I am so proud of her. She is keeping Isa’s memory alive.”

Ava says she wants to do “so much more” to support our charity. “I remember my aunty talked about Rainbows a lot and I know Isla used to enjoy going,” she said. “I really want to help children like Isla to have the best life they can and I know that Rainbows does that.”