A young girl doing arts and crafts

Darlene

Darlene suffers from a rare condition which causes muscle wasting and weakness. In the last few years, her family has…

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A family sat outside in the sun

Patrick

It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had…

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A young girl on a swing

Jessie

Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation…

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A young girl at Rainbows

Izzy

Despite suffering daily seizures and needing round the clock care, Izzy is a “little ray of sunshine”.

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A young boy sat in soft play

Jayden

At first glance you might easily think Jayden was like any other child. But Jayden is not like other children.…

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A family walking

Aadi

It was Christmas 2016 that Aadi and his family found themselves on a devastating journey they never expected.

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Reece

Reece was born with a condition which brings a complex range of life-limiting challenges and his future remains uncertain.

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A young girl sat outside waving

Isla

Isla has an illness so rare that she may be the only child in the world with the condition.

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A mum and daughter

Rae

Three days before her second birthday, Rae was diagnosed with spinal muscular atrophy, a muscle wasting disease.

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A young boy with his dog

Krystian

Krystian became confined to a wheelchair when he was eight-years-old and shortly afterwards, the family discovered our hospice.

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A baby girl wearing pink

Hannah

Baby Hannah lost her fight with life at 54-days-old after being born with Edwards’ Syndrome - a rare, serious chromosome…

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A mum and daughter smiling

Jodie

Rainbows is just the most wonderful place and the staff are incredible. They couldn’t change what we were going through…

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